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Definition
A Cancer Registry is a coordinated data collection system which
analyzes data on persons with a diagnosis of cancer for the
purpose of improving the quality of patient care and promoting
life-time follow-up.
Since 1956 the American College of Surgeons has recognized the
cancer registry as the focus of a hospital cancer program. As a
result of this manditory standard, a cancer registry is required for
ACS accreditation.
There are three general types of Cancer Registries:
• Hospital registries maintaining data on all patients diagnosed
and treated at their facility. Hospital registries report their
cancer cases to the state central registry as required by law.
• Central registries are population based registries maintaining
data on diagnosis in a defined qeographical area.
• Special purpose registries maintain data on a particular type
of cancer, such as pediatric tumors.
Functions
• Collection of significant diagnostic cancer data such as site,
histology, stage, treatment, current patient status, race,
sex, age, and length of survival.
• Life-time annual follow-up of all cancer patients diagnosed
and/or treated in the institution.
• Retrieval of data for physicians and investigators involved in
the study of cancer; oncology.
• Generation of statistical analysis of cancer data.
Confidentiality
• Patient identifying information and related medical data are strictly
maintained.
• Only aggregate data are analyzed and published without patient
identifiers.
History
• The first hospital-based Cancer Registry in the United States
was established in 1921 at (Grace)Yale-New Haven Hospital in New
Haven, Connecticut.
• The Connecticut State Tumor Registry was the first central registry
established in 1935.
• Since the 1950’s, the American College of Surgeons has diligently
worked to establish quidelines for hospital based registries.
• In 1971 the National Cancer Act budgeted money to the National
Cancer Institute for research, detection and treatment of cancer.
• In 1973 the Surveillance, Epidemiology and End Result (SEER)
Program of NCI established the first national cancer registry.
• In 1976 the Tumor Registrars Association of Connecticut
was founded.
• In 1977 the Tumor Registrars Association of Connecticut
was incorporated.
• In 1985 the Connecticut State Tumor Registry celebrated its 50th
Anniversary.
• In 1992 Congress established a National Program of Cancer
Registries.
(Public Law 102-515)
• In 1993 state laws across the United States make cancer a
reportable disease.
Today, cancer registries not only exist in the United States but, throughout the world.
The State of Connecticut Public Law, Chapter 333, Sec. 19-36-1, 2
effective 3/21/71 regulated that each hospital in Connecticut must
submit to the State Department of Public Health an abstract and life-
time follow-up on each cancer patient treated in that hospital. Failure
to comply can result in suspension or revocation of license of the
hospital.
PROFESSIONAL ORGANIZATIONS
NCRA
National Cancer Registrars Association
CRANE
Cancer Registrars Association
of New England
TRAC
Tumor Registrars Association
of Connecticut, Inc.
These organizations provide continuing education for the Cancer
Registrar in areas such as current cancer therapies, staging systems,
and methods of data analysis.
ALLIED PROGRAMS AND AGENCIES
American Cancer Society
American College of Surgeons
Connecticut State Medical Society
Connecticut Tumor Registry
RECOGNITION OF THE PROFESSION
Recognition has been received by the American College of Radiology,
the American College of Pathology, Chest Surgeons, Abdominal
Surgeons, Colon/Rectal Surgeons, The Connecticut State Medical
Society, and the American College of Surgeons.
CANCER REGISTRY
WORKING TO HELP
THE PATIENT - THE PHYSICIAN
Case Identification
Rapid retrieval of data for clinical and research studies.
Life-Time Patient Follow-Up
The Cancer Registry can act as a current follow-up source for
physicians whose patients may have relocated. Furthermore, the
Cancer Registry’s systematic requests for follow-up information
can serve as an automatic reminder for the physician to schedule
physical examinations for patients not seen in the past year.
Statistical Reports
The hospital’s cancer experience is documented regularly by the
Cancer Registry. These data assist the physician in evaluating
specific treatments in relation to the quality of patient care and
survival. The accumulated information is an invaluable source for
fundamental research on the epidemiology and treatment of cancer.
For further information contact:
The American Cancer Society
Southern New England Region
Meriden Executive Park
538 Preston Ave
Meriden, CT
Phone: (203) 379-4700
Fax: (203) 379-5060
Southwest New England Region
372 Danbury Rd
Wilton, CT
Phone: (203) 563-0740
Fax: (203) 563-0738
Rhode Island & Eastern Connecticut / Norwich
238 W Town St
Norwich, CT
Phone: (860) 887-2547
Fax: (860) 885-0820
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